The co-founder of Petsmart has CFS

I go around assuming that successful people must be healthy people, then I’m proven wrong by this article: Chronic fatigue drug in trial stage.  The article is primarily about Michael Manson, the co-founder of PetSmart, who’s suffered with CFS for almost 20 years, as has his business partner.  Who knew?!  Manson was part of the recent trial that tested Valcyte on CFS sufferers, and he feels just about cured.  The whole thing is very exciting, and I’d love to get in on a trial in my area.  I checked out the price of the Valcyte medication and six months worth would cost over $5000, so I’d be happy to exchange their meds for my voluntary guinea pig-ness.

Posted by on 01/16 at 03:54 AM

  1. I have suffered from C.F.S.for the last 15 years
    and would be willing to submit to trial or evenundergo the expense of the cqst of the
    medicatoin
    Desperate

    Posted by Susan Reynolds Maciel  on  02/02  at  10:43 AM

  2. I to have chronic fatigue and am only 28 no one seems to understand it all the people around you that are healthy. I have seen up to 20 doctors in the past three years ranging from family practice to nautropahts and homepaths acupunturist counsolors the list goes on.

    I would also be game for trying anything new that has come out that would be on a trial basis. Problem i have been finding is that I live in Oregon not a whole lot of help in this state thats for sure. I am in the process of filling disability and bankcruptcy. If anyone knows a good way to file disability I could use the help thats for sure.

    Helpless and Hopeless

    Tara D. Adams

    Posted by tara adams  on  03/01  at  08:28 AM

  3. You don’t need to wait for the trial.  Have your doctor run a blood test for HHV-6, HHV-7, and Epstine bar.  If you have elevated levels he can prescribe Valcyte at Dr. Montoyas higher than normal dose and duration. (see his journal study).

    Good luck.
    gdw

    Posted by gdw  on  03/10  at  05:55 PM

  4. I’m very late replying to this, but what was the dosage of Valtrex/Valganciclovir prescribed by Dr. Montoya?  I know he had patients take it for six months, but how many mg were they taking?  I see it comes in 500mg and 1g doses, and frankly, I don’t want to get excited about this until I’m sure I can afford this!

    Btw, I could only find the abstract of his study online (unless I wanted to pay $30 for the entire thing.  I wasn’t sure the entire report would have the dosage information, though).

    Posted by Leigh-Ann  on  03/30  at  04:58 AM

  5. I’ve read that he had patients on 1800mg for the 1st 3 weeks & then 900 mg for the rest of the time for a total of 6 months (or sometimes longer in some patients).
    My D is going to try it under the supervision of the allergist who has ended up treating a growing number of CFS patients in our state.
    Starion

    Posted by starion  on  07/10  at  11:32 AM

  6. Just reading this, and I tested positive for one of the HHVs (the one that causes cold sores), as well as Epstein Barr (that I had it in the past, which I suspected as I got mono twice, once in my teens and once in my 20s), Cytomegalovirus, Lyme disease, and my IgE, IgA and IgM were low (I think those are the ones; I’d have to look it up and I’m too tired to get up).

    Is Valcyte also Valtrex? Because I was on Valtrex but never as much as the amount mentioned here.

    Kat

    Posted by Kat  on  08/05  at  03:33 PM

  7. I have had CFS/CFIDS for nearly 17 years, have been on Valcyte for 6 months, and while I see some minor improvements, I also have major setbacks. One patient, who had CFS for 18 years, was cured after 8 1’2 months on Valcyte. I am wondering, is anyone out there in a similar condition to mine? What is your experience?

    Posted by Gary Kuntz  on  11/22  at  11:46 AM
    8. Page 1 of 1 pages

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