Spoon theory
I had a nice rant over on The Blogpound about people who don’t comprehend the enormity of living with FMS/CFS. Then one of my regular visitors, Helena, sent me a link to a wonderful blog and an entry about ”spoon theory”. It’s certainly appropriate and I identify with it completely! I’ve added the blog, But You Don’t Look Sick, to my blogroll, and look forward to reading more of it.
I love the spoon theory, very eloquent.
That must really suck...I figured I’d come over here and say that you seem so energetic and accomplished despite dealing with CFS and the other autoimmune stuff!
I’m bipolar and when I’m down (lots worse during menopause) I get awful periods of crashing fatigue and inertia and brain fog...not exactly comparable to what you are dealing with but I understand the feeling of having to struggle to get basic things done and keep putting one foot in front of the other all day. It SUCKS.
My ex had RA but he deserved it because he was (truly and in actual fact) a sociopath. You don’t deserve it but you do sure seem to be making a lot of things happen despite it.Posted by Carina on 02/07 at 03:56 PMThanks, Carina—I try to always “keep moving”, even if I’m not getting anything done, and that may create an illusion that I’m more active than I really am. I try so hard, every day. The pets force me to do more than I otherwise might.
Your brain fog may in fact be similar to what I get - don’t assume I have it harder than you do, because I might not! My biggest challenges are my physical limitations, because I’ve spent a lifetime being very strong for my size, and I still get peeved now when I can’t do something simple like lift a bag of dog food.
My mother seems to have the beginnings of RA, and I’ve often wondered if I might head down that path. So far, all my test results are negative.
As for exes who are sociopaths, well… I have an ex who left her mark, for sure. Not a sociopath, but mean and angry, and sad. I’m quite sure that my FMS was caused by the emotional trauma of being with her for so long.
Posted by Leigh-Ann on 02/10 at 08:20 PM
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