Fibromyalgia Network

Yes, I’m alive!

I’m writing this rare post to give kudos to the Fibromyalgia Network.  I finally joined the organization a ccouple of weeks ago, and I’m thrilled with their newsletter.  I actually bought a combo package of a membership plus 18 back issues of their newsletter (Membership + 18 issue back pack), and I’ve really enjoyed reading all the information in each issue.  There are no ads, just articles, and almost all of them have proven to be relevent to my condition.  The articles feature cutting-edge information about new drug trials and medications, rather than slipping into namby-pamby stuff like “fibro-hugs”.  While the occasional “fibro-hug” sent through cyberspace might be a mood-lifter, it’s not going to take my pain away like a prescription medication can.  There’s also information on alternative treatments, like yoga, but the majority of space is devoted to news from the world of medicine.

Another great thing about joining the Fibromyalgia Network is that they send you a list of approved doctors in your area who treat fibromyalgia.  My own doctor was listed, as were three or four others who I wasn’t aware of.  I think this is an excellent resource, and highly encourage you to at least buy one sample issue if you’re still not sure about joining.  I feel like I’m well-informed about FMS treatments, but these newsletters took my awareness up another notch.

On a personal note, I’m hanging in there, although I still feel as if my FMS is getting worse.  I’m holding down two great jobs, and I’m sure that I push myself a bit too hard.  At least the medications I’m on have given me the ability to push myself as much as I do.  I’d still like to find the “perfect” pain medication, but also want to explore some “treat the cause” therapies, like HGH.  I wish GHB was legal… from what I’ve read, the drug Xyrem (the prescription version of GHB) can work miracles for FMS patients.  Those of us who obey the law always end up being screwed by people who don’t.

Posted by on 04/07 at 07:13 PM

I've been forced to put comments on moderation because of recent spamming, and I've also removed the spot where you can leave the url of your blog. I'm sorry... if you have a blog that you'd like me to add to my blogroll, please email it to me! And spammers, urls left in comments are not converted to links. If by some rare chance you leave a comment which is actually on topic, I'll just remove your url before I approve your comment anyway. Long story short, it's a waste of time to spam here. No one but me will ever see it, and I'll block your IP at the server level.

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